CDF Milestones – Marilyn’s Message December 2020
The Celiac Disease Foundation achieved a number of critical milestones in 2020 in our efforts to accelerate the development of treatments and a cure for celiac disease.
Continue ReadingThe Celiac Disease Foundation achieved a number of critical milestones in 2020 in our efforts to accelerate the development of treatments and a cure for celiac disease.
Continue ReadingI am thankful for your support, which has allowed the Celiac Disease Foundation to make a meaningful difference in the lives of our celiac community.
Continue ReadingSecuring public and private health insurance coverage of Medical Nutrition Therapy (MNT) for celiac disease patients has been a long-time priority of the Celiac Disease Foundation.
Continue ReadingWe are pleased to announce our newest online resource for patients and caregivers to drive policy change to improve the health of those living with celiac disease and accelerate research: iAdvocate.
Continue ReadingCDF has been approved for a $100,000 funding award through the Eugene Washington PCORI Engagement Awards program. The funds will support the community convening of patient advocates, researchers, and other key stakeholders to create a roadmap for patient advocate engagement in research.
Continue ReadingOn December 11, 2019, CEO Marilyn G. Geller was with Senator Blumenthal's legislative staff as Senator Richard Blumenthal (D-CT) introduced S.3021: Gluten in Medicine Disclosure Act of 2019 to the Senate. The Celiac Disease Foundation is proud to be a partner in this effort.
Continue ReadingAfter decades of pleading with our federal government to take celiac disease as seriously as it does other diseases with comparable patient impact, yesterday, the U.S. House and Senate each passed, and President Trump has signed, the FY2020 Federal budget resolution.
Continue ReadingI’m writing to invite you to join me and others from across the healthcare community at the 2019 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, being held September 18-20 at the Marriott Wardman Park Hotel in Washington, DC. As a member of PCORI’s Advisory Panel on Patient Engagement, I know firsthand that PCORI’s staff is…
Continue ReadingOutside Witness Testimony – Fiscal Year 2020 Appropriations Prepared By Marilyn G. Geller, CEO, Celiac Disease Foundation Prepared for the Subcommittee on Labor, Health and Human Services, Education and Related Agencies Committee on Appropriations United States Senate June 3, 2019 ______________________________ Chairman Blunt, Ranking Member Murray, and distinguished Members of the Subcommittee,…
Continue ReadingOn April 9, 2019, Marilyn G. Geller, CEO of the Celiac Disease Foundation, testified before the House Appropriations Subcommittee overseeing the funding for the Department of Health and Human Services, including the National Institutes of Health (NIH).
Continue Reading